Insights into successful rare disease research
26 March 2012 - Workshop hosted by the Health Research Board on behalf of the National Steering Group
Overview
The workshop brought together national and international speakers and Irish researchers. Keynote presentations on the elements involved in successful research in the area of rare disease were followed by a panel discussion on the barriers, solutions and opportunities in rare disease research.
This meeting was intended to provide an opportunity to input to planning for the future of rare disease research in Ireland and inform deliberations in the area of research for the forthcoming Irish National Plan for Rare Diseases. This event outlined how Ireland can move forward in the area of rare disease research and participate at an international level.
Agenda
09:00 – 09:30 Registration (tea/coffee)
09:30 – 09:40 Opening Remarks Dr Helen McAvoy, IPH, representing National Steering Group
09:40 – 10:10 Prof Orla Hardiman, Trinity College Dublin
10:10 – 10:40 Dr José Maria Millan, deputy director of CIBERER, Valencia, Spain
10:40 – 11:10 Prof Brendan Buckley, University College Cork
11:10 – 11:30 Coffee break
11:30 – 12:00 Céline Hubert, Operational Director, Rare Diseases Foundation, France
12:00 - 13:30 Panel Discussion, chaired by Prof Leonie Young, RCSI
13:30 Workshop Close
Download speaker presentations
Celine Hubert
Dr Helen McAvoy
Dr Jose Millan
Professor Brendan Buckley
Professor Orla Hardiman
Overview
The workshop brought together national and international speakers and Irish researchers. Keynote presentations on the elements involved in successful research in the area of rare disease were followed by a panel discussion on the barriers, solutions and opportunities in rare disease research.
This meeting was intended to provide an opportunity to input to planning for the future of rare disease research in Ireland and inform deliberations in the area of research for the forthcoming Irish National Plan for Rare Diseases. This event outlined how Ireland can move forward in the area of rare disease research and participate at an international level.
Agenda
09:00 – 09:30 Registration (tea/coffee)
09:30 – 09:40 Opening Remarks Dr Helen McAvoy, IPH, representing National Steering Group
09:40 – 10:10 Prof Orla Hardiman, Trinity College Dublin
10:10 – 10:40 Dr José Maria Millan, deputy director of CIBERER, Valencia, Spain
10:40 – 11:10 Prof Brendan Buckley, University College Cork
11:10 – 11:30 Coffee break
11:30 – 12:00 Céline Hubert, Operational Director, Rare Diseases Foundation, France
12:00 - 13:30 Panel Discussion, chaired by Prof Leonie Young, RCSI
13:30 Workshop Close
Download speaker presentations
Celine Hubert
Dr Helen McAvoy
Dr Jose Millan
Professor Brendan Buckley
Professor Orla Hardiman
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